Dementia Care Queensland
A support coordinator going through paperwork with a man and a woman at their dining table.

Services

Specialist Support Coordination for dementia

A coordinator who speaks dementia.

Navigating the NDIS with dementia is complex. Our Specialist Support Coordinators work only with people living with dementia and cognitive decline, so they plan for what's coming, not just what's in front of them.

More than NDIS navigation.

Specialist Support Coordination is the highest level of coordination funded by the NDIS. It's for people whose situation is complex, and dementia is one of the most complex there is.

Our coordinators don't just manage a plan. They understand how dementia progresses, how needs change, and how to build supports that move with the person, not just the diagnosis. They work with families, hospitals, clinicians and providers so everyone is pulling in the same direction.

Already using other providers for support work? That's fine. Our coordinators work with whoever is right for the person.

What our coordinators actually do.

  • Plan with purpose.

    Plans built around where the person is now and where they're heading, so they're never caught without the right supports.

  • Act fast when things change.

    A hospital admission, a carer who can't continue, a home that's no longer safe. We move quickly and hold everything together.

  • Build the evidence.

    We work with the treating team on reports and evidence for plan reviews and reassessments, so the plan reflects the person.

  • Find the right providers.

    We connect the right supports, check they're working, and step in when they're not.

  • Open the housing pathways.

    SIL, medium term accommodation, Specialist Disability Accommodation, individualised living options and home modifications.

  • Stand beside the family.

    One consistent coordinator who becomes the trusted point of contact for the person and everyone who loves them.

Who we coordinate for.

  • People with Specialist Support Coordination funded in their NDIS plan
  • Young onset dementia, especially with a young family, a mortgage or a job at stake
  • Huntington's disease, frontotemporal dementia, brain injury and other complex presentations
  • People in hospital, or at risk of losing their home
  • Situations involving guardians, EPOAs, several providers or several systems at once
  • Families who are exhausted and need someone to carry the load

Not sure if the plan includes Specialist Support Coordination? Call us. If the situation calls for it, we'll help you ask for it at the next plan review.

How it works.

  1. Talk to us.

    Call any time or send a referral. We respond the same business day.

  2. We meet.

    At home, on the ward or by video, with the person and the people who matter to them.

  3. We plan.

    A written action plan with priorities, timeframes and who is doing what.

  4. We coordinate and review.

    Regular check ins, fast action when things change, and evidence ready for every review.

Proactive, not reactive

Plans that look six months ahead.

Families tell us the difference is being called before they knew they needed us. That's the point. Dementia is progressive, so good coordination is always one step ahead of the next change.

A woman smiling during a phone call as she takes notes by a sunny window.

Our standards

Our commitments. In writing.

Same day
Every referral answered the same business day
Same day
First contact with the person and family
No charge
Discharge meetings, case conferences and MDTs
One
Named coordinator from the first call

Where it's available.

Specialist Support Coordination is available across all of Queensland, face to face and by phone or video.

How it's funded.

Specialist Support Coordination is funded from the Support Coordination budget in Capacity Building supports. There's no out of pocket cost for supports funded in the plan, and it works with NDIA managed, plan managed and self managed plans.

“We'd been through three support coordinators before we found Dementia Care Queensland. None of them really understood Dad's condition, they were juggling too many clients, too many diagnoses. Our coordinator here is different. She calls before we even know we need her. She's already thought about what Dad's going to need in six months. That kind of proactive care, we'd never experienced it before.”
Rebecca L.Daughter and primary carer, father living with frontotemporal dementia, Sunshine Coast

Questions about Specialist Support Coordination

The right coordination changes everything.

A conversation costs nothing. Call any time, or send a referral and we'll respond the same business day.